Projects per year
Personal profile
Expertise
Steven Vanderstichelen is a senior postdoctoral research fellow (FWO) and public health researcher in palliative care with experience in population-based and community-based research methods, combining quantitative (survey research) and qualitative (focus groups, interviews) research methods. Steven is research coordinator of the Compassionate Communities Centre of Expertise at the Vrije Universiteit Brussel, an interdisciplinary research programme in which 8 research groups from 4 faculties work together studying public health and community-based approaches to the societal challenges of serious illness, death, dying and loss. Steven's main research interests focus on the development and evaluation of compassionate community models, including communities, schools and workplaces, and the development and of the concept of Death Literacy and its promise for building and evaluating community capacity in supporting people facing end-of-life challenges. Steven is an ex-officio council member of Public Health Palliative Care International, a steering group member of the EAPC Reference Group on Public Health and Palliative Care, and co-coordinator and co-PI of the Horizon Europe EU-CoWork project.
Keywords
- free keyword
- Public Health
- Palliative Care
- Compassionate Communities
- Death Literacy
- Sociology of health
- Volunteering
- Compassionate Workplaces
- Interdisciplinary science
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Collaborations and top research areas from the last five years
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VLOV236: Monitoring and evaluation of palliative care reform in flanders
Van den Block, L. (Administrative Promotor) & Vanderstichelen, S. (Collaborator)
1/12/24 → 31/12/29
Project: Fundamental
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IRP24: Studying the complex role of the environment in shaping practices and experiences of serious illness, caregiving, dying and grieving through interdisciplinary research and innovation in Compassionate Communities (COCO_ENV)
Cohen, J. (Administrative Promotor), Dury, S. (Administrative Promotor), Van den Block, L. (CoI (Co-Promotor)), Pivodic, L. (CoI (Co-Promotor)), De Donder, L. (CoI (Co-Promotor)), Dierckx, E. (CoI (Co-Promotor)), Smetcoren, A.-S. (CoI (Co-Promotor)), Snoeck, C. (CoI (Co-Promotor)), De Backer, F. (CoI (Co-Promotor)), Lombaerts, K. (CoI (Co-Promotor)), Spruyt, B. (CoI (Co-Promotor)), De Moortel, D. (CoI (Co-Promotor)), Bekers, E. (CoI (Co-Promotor)), Aernouts, N. (CoI (Co-Promotor)), Ryckewaert, M. (CoI (Co-Promotor)), Van Droogenbroeck, F. (CoI (Co-Promotor)), Beeckman, K. (CoI (Co-Promotor)), Brosens, D. (CoI (Co-Promotor)), De Gieter, S. (CoI (Co-Promotor)), Vanderstichelen, S. (Collaborator), Quintiens, B. (Collaborator) & Bakelants, H. (Collaborator)
1/11/24 → 31/10/29
Project: Fundamental
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EUAR180: EU-CoWork : Developing Compassionate Workplaces in Europe for the digital and green work environment to protect employees’ mental and physical health and wellbeing
Cohen, J. (Administrative Promotor), Dury, S. (Collaborator), Van Droogenbroeck, F. (Collaborator), Vanderstichelen, S. (Collaborator), De Moortel, D. (CoI (Co-Promotor)) & Bakelants, H. (Collaborator)
1/01/24 → 31/12/28
Project: Applied
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FWOAL1113: Uncovering the causal mechanisms related to Death Literacy
Cohen, J. (Administrative Promotor), Dury, S. (Collaborator), Van Droogenbroeck, F. (Collaborator) & Vanderstichelen, S. (Collaborator)
1/01/24 → 31/12/27
Project: Fundamental
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FWOTM1173: Uncovering the causal mechanisms related to Death Literacy
Vanderstichelen, S. (Mandate) & Cohen, J. (Administrative Promotor)
1/10/23 → 16/10/26
Project: Fundamental
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Developing Compassionate Workplaces in Europe for the digital and green work environment to protect employees’ mental and physical health and wellbeing Deliverable no. D5.2 Report on country-specific care regimes and policies: Part of WP 5: Cross-sectional analysis of baseline observational data
Wegleitner, K., Sardiello, T., Berg Janson, A., Pupic, D., Kreimer, K., Öman Olsson, L., Tishelman, C., De Moortel, D., Vanderstichelen, S., Papaioannou, K., Vanbeuren, E., Bakelants, H. & Cohen, J., 27 Feb 2026, 67 p.Research output: Book/Report › Commissioned report
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EAPC White Paper: What are the priorities for Public Health & Palliative Care research in the coming decade? Results from an International Delphi study
Vanderstichelen, S., Tishelman, C., Heide, A. V. D., McIlfatrick, S., Sallnow, L., Deliens, L. & Cohen, J., Jun 2026, In: Palliative Medicine. 40, 6, p. 810-822 13 p.Research output: Contribution to journal › Article › peer-review
Open AccessFile5 Downloads (Pure) -
Evaluation of the “Attentive Visitors” training program to support community volunteers in their palliative care signposting role: a multimethods design
Steenbergen, S. V., Dury, S., Deliens, L., Chambaere, K. & Vanderstichelen, S., 6 May 2026, In: Palliative Medicine. 17 p.Research output: Contribution to journal › Article › peer-review
Open AccessFile -
Measurement invariance of the Death Literacy Index across Flemish Belgium, The Netherlands, and Sweden
Johansson, T., Bujacz, A., Kowalski, L., Tishelman, C., Nierop-van Baalen, C. A., Eriksson, L. E., Groot, M., Olsson, Å., Vanderstichelen, S., Cohen, J. & Goliath, I., 2026, In: Death Studies. 50, 5, p. 815-823 9 p.Research output: Contribution to journal › Article › peer-review
Open AccessFile3 Citations (Scopus)30 Downloads (Pure) -
Out of harm’s way? Zelfbeschadiging bij Vlaamse ouderen
Van Hove, L., Vanderstichelen, S. & Baetens, I., 2026, (Accepted/In press) In: Tijdschrift voor Ouderenpsychologie. 11 p.Research output: Contribution to journal › Article
Datasets
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Survey of Palliative Care Volunteers in Flanders 2018
Vanderstichelen, S. (Creator), Cohen, J. (Creator), Van Wesemael, Y. (Creator), Deliens, L. (Creator) & Chambaere, K. (Creator), Zenodo, 2025
Dataset
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International Delphi study of future research priorities in public health & palliative care
Vanderstichelen, S. (Creator) & Cohen, J. (Creator), VUB Institutional Data Repository, 24 Mar 2026
Dataset
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LVH_PhD_Interviews
Baetens, I. (Creator), Van Hove, L. (Creator) & Vanderstichelen, S. (Creator), VUB Institutional Data Repository, 27 Feb 2025
Dataset
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Attentive Visitors: knowledge and skills that are needed for community volunteers to take on a signposting role in community-based palliative care
Van Steenbergen, S. (Creator), Chambaere, K. (Creator), Vanderstichelen, S. (Creator), Deliens, L. (Creator) & Dury, S. (Creator), VUB Institutional Data Repository, 20 Mar 2026
Dataset
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Development of the ‘Attentive Visitors’ workshop supporting community volunteers in their palliative care signposting role
Van Steenbergen, S. (Creator), Chambaere, K. (Creator), Vanderstichelen, S. (Creator), Statema, H. (Creator), Deliens, L. (Creator) & Dury, S. (Creator), VUB Institutional Data Repository, 20 Mar 2026
Dataset
Prizes
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Best Abstract Award
Cantaert, G. (Recipient), Chambaere, K. (Recipient) & Vanderstichelen, S. (Recipient), 7 Oct 2020
Prize: Prize (including medals and awards)
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Best Abstract Award
Vanderstichelen, S. (Recipient), Pelttari, L. (Recipient) & Scott, R. (Recipient), 7 Oct 2020
Prize: Prize (including medals and awards)
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Best Abstract Award
Van Steenbergen, S. (Recipient), Vanderstichelen, S. (Recipient), Statema, H. (Recipient), Deliens, L. (Recipient), Dury, S. (Recipient) & Chambaere, K. (Recipient), 15 Jun 2023
Prize: Prize (including medals and awards)
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Best Abstract Award for The Liminal Space Palliative Care Volunteers Occupy and the Roles They Perform within it: A Qualitative Study
Vanderstichelen, S. (Recipient), May 2019
Prize: Prize (including medals and awards)
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Best Abstract Award for Vrijwilligers palliatieve zorg: een survey overheen de Vlaamse Gezondheidszorg
Vanderstichelen, S. (Recipient), Nov 2019
Prize: Prize (including medals and awards)
Activities
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Open Meeting: EAPC Reference Group on Public Health and Palliative Care
Cohen, J. (Speaker), Sallnow, L. (Speaker) & Vanderstichelen, S. (Speaker)
15 May 2026Activity: Talk or presentation › Talk or presentation at a conference
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3rd International Death Literacies Symposium
Vanderstichelen, S. (Organiser), Sallnow, L. (Organiser), Noonan, K. (Organiser) & Goossensen, A. (Host)
9 Mar 2026 → 10 Mar 2026Activity: Participating in or organising an event › Participating in or organizing an event at an external academic organisation
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Compassionate Communities: A public health approach to serious illness, dying and loss
Vanderstichelen, S. (Keynote speaker)
11 Mar 2026Activity: Talk or presentation › Talk or presentation at a workshop/seminar
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7th webinar EAPC Reference Group Public Health & Palliative Care
Cohen, J. (Chair), Vanderstichelen, S. (Host) & Sallnow, L. (Host)
4 Mar 2026Activity: Participating in or organising an event › Participation in workshop, seminar
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Understanding (in)direct self-harm among older psychiatric patients: A descriptive, cross-setting comparison
Van Hove, L. (Speaker), Vanderstichelen, S. (Contributor) & Baetens, I. (Contributor)
21 May 2026Activity: Talk or presentation › Talk or presentation at a conference
Press/Media
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Open brief aan Hilde Crevits en Frank Vandenbroucke: We sterven maar één keer, laten we dat dus goed voorbereiden
Deliens, L., Cohen, J., De Donder, L., Dury, S., Chambaere, K., Quintiens, B., Dheedene, M., Spruyt, B., Hooghe, A., De Backer, F., Lombaerts, K., Vanroelen, C., Bakelants, H., D'Eer, L., Vanderstichelen, S., Van Hove, L., De Gieter, S., De Moortel, D., Crois, E., Smetcoren, A.-S., Theuns, P., Dierckx, E. & Soyez, V.
13/07/23
1 Media contribution
Press/Media: Expert Comment
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De buurt als zorgverlener rondom het levenseinde.
Vanderstichelen, S., Matthys, M., Deliens, L. & Cohen, J.
15/07/22
1 Media contribution
Press/Media: Expert Comment
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De buurt als zorgverlener rondom het levenseinde.
Vanderstichelen, S., Matthys, M., D'Eer, L., Deliens, L. & Cohen, J.
13/07/22
1 Media contribution
Press/Media: Expert Comment
Thesis
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Volunteering in Palliative Care A study of volunteer tasks, support, roles, involvement and collaboration with professionals in the Flemish healthcare system
Vanderstichelen, S. ((PhD) Student), Chambaere, K. (Promotor), Deliens, L. (Promotor), Cohen, J. (Co-promotor), Sallnow, L. (Jury), Goossens, A. (Jury), Dury, S. (Jury), Pype, P. (Jury), Hustinx, L. (Jury) & Van den Block, L. (Jury), Chambaere, K. (Promotor), Deliens, L. (Promotor), Cohen, J. (Co-promotor), Sallnow, L. (Jury), Goossens, A. (Jury), Dury, S. (Jury), Pype, P. (Jury), Hustinx, L. (Jury) & Van den Block, L. (Jury), 12 Jul 2019Student thesis: Doctoral Thesis