Development of an International Core Outcome set for evaluating the effectiveness of early integration of specialist palliative care services

While recent research suggests patients with life-threatening illnesses and their families might benefit from earlier integration of specialist palliative care services, in particular in cancer, evidence is inconclusive. One major problem is the absence of a core set of outcome measures that researchers can use when evaluating the effectiveness of early palliative care. Current trials differ substantially in the outcomes and outcome measurements chosen, which hinders adequate comparison of existing studies and consequently evidence-informed policy-making. In this study, I will develop the first international core outcome set for early palliative care, following the COMET methodology. This specifically includes a systematic literature review, semi-structured interviews with patients and families, and structured online consultations aimed at achieving consensus
among key stakeholders. The core outcomes set will be an important starting point for future clinical trials aimed at evaluating the effectiveness of early integration of specialist palliative care services in diverse populations and settings.