Project Details
Description
Annually about 50,000 Belgian families face perinatal loss (miscarriage, stillbirth or neonatal loss),
causing distress for bereaved families and their support systems. Unfortunately, families often
experience a lack of support, hindering coping ability. Instead of specialized care providers who have
limited available time and resources, primary healthcare providers and community networks can play
a crucial role in perinatal bereavement care. An interview study will identify primary care providers’
and community members’ needs in providing perinatal bereavement support. This will inform two
interventions aiding primary care professionals (PERIBRAVE-PRO) and the community (PERIBRAVECOM) in supporting grieving parents. We'll use the Theory of Change Framework to design,
implement, and evaluate our interventions, focusing on understanding social change processes. A
stakeholder panel of primary care providers, community members and bereaved families will cocreate these interventions in workshops. They'll establish goals, determine tools, and implementation
strategies tailored to end-users' needs, which will be tested and evaluated in one health care region
aiming for a paradigm shift in perinatal bereavement, fostering community compassion and providing
a replicable global model. Expected outcomes include robust support networks, empowered
healthcarers, and scalable care frameworks. This project advances the growing importance of the
public health palliative care approach.
causing distress for bereaved families and their support systems. Unfortunately, families often
experience a lack of support, hindering coping ability. Instead of specialized care providers who have
limited available time and resources, primary healthcare providers and community networks can play
a crucial role in perinatal bereavement care. An interview study will identify primary care providers’
and community members’ needs in providing perinatal bereavement support. This will inform two
interventions aiding primary care professionals (PERIBRAVE-PRO) and the community (PERIBRAVECOM) in supporting grieving parents. We'll use the Theory of Change Framework to design,
implement, and evaluate our interventions, focusing on understanding social change processes. A
stakeholder panel of primary care providers, community members and bereaved families will cocreate these interventions in workshops. They'll establish goals, determine tools, and implementation
strategies tailored to end-users' needs, which will be tested and evaluated in one health care region
aiming for a paradigm shift in perinatal bereavement, fostering community compassion and providing
a replicable global model. Expected outcomes include robust support networks, empowered
healthcarers, and scalable care frameworks. This project advances the growing importance of the
public health palliative care approach.
Acronym | FWOAL1164 |
---|---|
Status | Active |
Effective start/end date | 1/01/25 → 31/12/28 |
Keywords
- Perinatal loss
- Compassionate communities
- Theory of Change
Flemish discipline codes in use since 2023
- Palliative care and end-of-life care
- Neonatology
- Obstetrics
- Bioethics