TY - JOUR
T1 - A multi-stage process to develop quality indicators for community-based palliative care using interRAI data
AU - Guthrie, Dawn M
AU - Williams, Nicole
AU - Beach, Cheryl
AU - Buzath, Emma
AU - Cohen, Joachim
AU - Declercq, Anja
AU - Fisher, Kathryn
AU - Fries, Brant E
AU - Goodridge, Donna
AU - Hermans, Kirsten
AU - Hirdes, John P
AU - Seow, Hsien
AU - Silveira, Maria
AU - Sinnarajah, Aynharan
AU - Stevens, Susan
AU - Tanuseputro, Peter
AU - Taylor, Deanne
AU - Vadeboncoeur, Christina
AU - Martin, Tracy Lyn Wityk
PY - 2022/4
Y1 - 2022/4
N2 - BACKGROUND: Individuals receiving palliative care (PC) are generally thought to prefer to receive care and die in their homes, yet little research has assessed the quality of home- and community-based PC. This project developed a set of valid and reliable quality indicators (QIs) that can be generated using data that are already gathered with interRAI assessments-an internationally validated set of tools commonly used in North America for home care clients. The QIs can serve as decision-support measures to assist providers and decision makers in delivering optimal care to individuals and their families.METHODS: The development efforts took part in multiple stages, between 2017-2021, including a workshop with clinicians and decision-makers working in PC, qualitative interviews with individuals receiving PC, families and decision makers and a modified Delphi panel, based on the RAND/ULCA appropriateness method.RESULTS: Based on the workshop results, and qualitative interviews, a set of 27 candidate QIs were defined. They capture issues such as caregiver burden, pain, breathlessness, falls, constipation, nausea/vomiting and loneliness. These QIs were further evaluated by clinicians/decision makers working in PC, through the modified Delphi panel, and five were removed from further consideration, resulting in 22 QIs.CONCLUSIONS: Through in-depth and multiple-stakeholder consultations we developed a set of QIs generated with data already collected with interRAI assessments. These indicators provide a feasible basis for quality benchmarking and improvement systems for care providers aiming to optimize PC to individuals and their families.
AB - BACKGROUND: Individuals receiving palliative care (PC) are generally thought to prefer to receive care and die in their homes, yet little research has assessed the quality of home- and community-based PC. This project developed a set of valid and reliable quality indicators (QIs) that can be generated using data that are already gathered with interRAI assessments-an internationally validated set of tools commonly used in North America for home care clients. The QIs can serve as decision-support measures to assist providers and decision makers in delivering optimal care to individuals and their families.METHODS: The development efforts took part in multiple stages, between 2017-2021, including a workshop with clinicians and decision-makers working in PC, qualitative interviews with individuals receiving PC, families and decision makers and a modified Delphi panel, based on the RAND/ULCA appropriateness method.RESULTS: Based on the workshop results, and qualitative interviews, a set of 27 candidate QIs were defined. They capture issues such as caregiver burden, pain, breathlessness, falls, constipation, nausea/vomiting and loneliness. These QIs were further evaluated by clinicians/decision makers working in PC, through the modified Delphi panel, and five were removed from further consideration, resulting in 22 QIs.CONCLUSIONS: Through in-depth and multiple-stakeholder consultations we developed a set of QIs generated with data already collected with interRAI assessments. These indicators provide a feasible basis for quality benchmarking and improvement systems for care providers aiming to optimize PC to individuals and their families.
KW - Delphi Technique
KW - Home Care Services
KW - Humans
KW - North America
KW - Palliative Care
KW - Quality Indicators, Health Care
UR - http://www.scopus.com/inward/record.url?scp=85127930926&partnerID=8YFLogxK
U2 - 10.1371/journal.pone.0266569
DO - 10.1371/journal.pone.0266569
M3 - Article
C2 - 35390091
VL - 17
JO - PLoS ONE
JF - PLoS ONE
SN - 1932-6203
IS - 4
M1 - e0266569
ER -