Advance care planning among older adults of Moroccan origin: An interview-based study

Hakki Demirkapu; Redouan Hajji; Brahim Chater; Stéphanie De Maesschalck; Lieve Van den Block; Aline De Vleminck; Dirk Devroey

doi:10.1016/j.pec.2023.107794

Advance care planning among older adults of Moroccan origin: An interview-based study

Hakki Demirkapu, Redouan Hajji, Brahim Chater, Stéphanie De Maesschalck, Lieve Van den Block, Aline De Vleminck, Dirk Devroey

Research output: Contribution to journal › Article › peer-review

1 Citation (Scopus)

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Abstract

OBJECTIVE: To explore advance care planning (ACP)-related knowledge, experience, views, facilitators and barriers among older Moroccan adults in Belgium.

METHOD: General practitioners (GPs) recruited participants for semi-structured interviews. Data were analysed using the constant comparative method.

RESULTS: The 25 interviewees (average age, 74 years) lacked ACP knowledge and had not discussed it with healthcare professionals. After a brief explanation, most interviewees did not find ACP useful. After more explanation with a specific example, they had fewer religious objections and were more willing to have discussions with their GPs and/or relatives. ACP barriers were a lack of knowledge, current good health, potential harm of talking about death, trust in one's children to make care decisions and fear of worrying one's children. Facilitators were GPs' information provision, children's involvement in ACP discussions and the desire to not depend on children.

CONCLUSION: Many older Moroccan adults lacked familiarity, but were willing to discuss ACP after receiving understandable concrete information. GPs should facilitate ACP discussions for these patients, ideally with adult children involved, with consideration of barriers, individual preferences and generally low educational levels.

PRACTICE IMPLICATIONS: GPs should provide comprehensible ACP information with case examples and consider potential barriers and facilitators in this group.

Original language	English
Article number	107794
Number of pages	7
Journal	Patient Education and Counseling
Volume	113
Early online date	2023
DOIs	https://doi.org/10.1016/j.pec.2023.107794
Publication status	Published - Aug 2023

Bibliographical note

Funding Information:
We would like to thank all participating GPs and patients for their time and effort. “I confirm all patient/personal identifiers have been removed or disguised so the patient/person(s) described are not identifiable and cannot be identified through the details of the story.”

Publisher Copyright:
© 2023 Elsevier B.V.

Copyright:
Copyright 2023 Elsevier B.V., All rights reserved.

Keywords

Advance care planning
Elderly
End-of-life care
Ethnic minorities
General practice
Qualitative study

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10.1016/j.pec.2023.107794

2023_DemirkapuH_PatientEducationCounsAccepted author manuscript, 344 KBLicence: CC BY-NC-ND

Cite this

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title = "Advance care planning among older adults of Moroccan origin: An interview-based study",

abstract = "OBJECTIVE: To explore advance care planning (ACP)-related knowledge, experience, views, facilitators and barriers among older Moroccan adults in Belgium.METHOD: General practitioners (GPs) recruited participants for semi-structured interviews. Data were analysed using the constant comparative method.RESULTS: The 25 interviewees (average age, 74 years) lacked ACP knowledge and had not discussed it with healthcare professionals. After a brief explanation, most interviewees did not find ACP useful. After more explanation with a specific example, they had fewer religious objections and were more willing to have discussions with their GPs and/or relatives. ACP barriers were a lack of knowledge, current good health, potential harm of talking about death, trust in one's children to make care decisions and fear of worrying one's children. Facilitators were GPs' information provision, children's involvement in ACP discussions and the desire to not depend on children.CONCLUSION: Many older Moroccan adults lacked familiarity, but were willing to discuss ACP after receiving understandable concrete information. GPs should facilitate ACP discussions for these patients, ideally with adult children involved, with consideration of barriers, individual preferences and generally low educational levels.PRACTICE IMPLICATIONS: GPs should provide comprehensible ACP information with case examples and consider potential barriers and facilitators in this group.",

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author = "Hakki Demirkapu and Redouan Hajji and Brahim Chater and {De Maesschalck}, St{\'e}phanie and {Van den Block}, Lieve and {De Vleminck}, Aline and Dirk Devroey",

note = "Funding Information: We would like to thank all participating GPs and patients for their time and effort. “I confirm all patient/personal identifiers have been removed or disguised so the patient/person(s) described are not identifiable and cannot be identified through the details of the story.” Publisher Copyright: {\textcopyright} 2023 Elsevier B.V. Copyright: Copyright 2023 Elsevier B.V., All rights reserved.",

year = "2023",

month = aug,

doi = "10.1016/j.pec.2023.107794",

language = "English",

volume = "113",

journal = "Patient Education and Counseling",

issn = "0738-3991",

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T2 - An interview-based study

AU - Demirkapu, Hakki

AU - Hajji, Redouan

AU - Chater, Brahim

AU - De Maesschalck, Stéphanie

AU - Van den Block, Lieve

AU - De Vleminck, Aline

AU - Devroey, Dirk

N1 - Funding Information: We would like to thank all participating GPs and patients for their time and effort. “I confirm all patient/personal identifiers have been removed or disguised so the patient/person(s) described are not identifiable and cannot be identified through the details of the story.” Publisher Copyright: © 2023 Elsevier B.V. Copyright: Copyright 2023 Elsevier B.V., All rights reserved.

PY - 2023/8

Y1 - 2023/8

N2 - OBJECTIVE: To explore advance care planning (ACP)-related knowledge, experience, views, facilitators and barriers among older Moroccan adults in Belgium.METHOD: General practitioners (GPs) recruited participants for semi-structured interviews. Data were analysed using the constant comparative method.RESULTS: The 25 interviewees (average age, 74 years) lacked ACP knowledge and had not discussed it with healthcare professionals. After a brief explanation, most interviewees did not find ACP useful. After more explanation with a specific example, they had fewer religious objections and were more willing to have discussions with their GPs and/or relatives. ACP barriers were a lack of knowledge, current good health, potential harm of talking about death, trust in one's children to make care decisions and fear of worrying one's children. Facilitators were GPs' information provision, children's involvement in ACP discussions and the desire to not depend on children.CONCLUSION: Many older Moroccan adults lacked familiarity, but were willing to discuss ACP after receiving understandable concrete information. GPs should facilitate ACP discussions for these patients, ideally with adult children involved, with consideration of barriers, individual preferences and generally low educational levels.PRACTICE IMPLICATIONS: GPs should provide comprehensible ACP information with case examples and consider potential barriers and facilitators in this group.

AB - OBJECTIVE: To explore advance care planning (ACP)-related knowledge, experience, views, facilitators and barriers among older Moroccan adults in Belgium.METHOD: General practitioners (GPs) recruited participants for semi-structured interviews. Data were analysed using the constant comparative method.RESULTS: The 25 interviewees (average age, 74 years) lacked ACP knowledge and had not discussed it with healthcare professionals. After a brief explanation, most interviewees did not find ACP useful. After more explanation with a specific example, they had fewer religious objections and were more willing to have discussions with their GPs and/or relatives. ACP barriers were a lack of knowledge, current good health, potential harm of talking about death, trust in one's children to make care decisions and fear of worrying one's children. Facilitators were GPs' information provision, children's involvement in ACP discussions and the desire to not depend on children.CONCLUSION: Many older Moroccan adults lacked familiarity, but were willing to discuss ACP after receiving understandable concrete information. GPs should facilitate ACP discussions for these patients, ideally with adult children involved, with consideration of barriers, individual preferences and generally low educational levels.PRACTICE IMPLICATIONS: GPs should provide comprehensible ACP information with case examples and consider potential barriers and facilitators in this group.

KW - Advance care planning

KW - Elderly

KW - End-of-life care

KW - Ethnic minorities

KW - General practice

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Advance care planning among older adults of Moroccan origin: An interview-based study

Abstract

Bibliographical note

Keywords

Access to Document

Other files and links

Fingerprint

SRP69: SRP-Onderzoekszwaartepunt: Addressing the challenges around serious illness, palliative care and the end of life: public health, health services and clinical innovations

FWOSB51: Advance care planning (ACP) with people with dementia and their caregivers: development of an ACP communication in dementia skills training for physicians

Cite this

Advance care planning among older adults of Moroccan origin: An interview-based study

Abstract

Bibliographical note

Keywords

Access to Document

Other files and links

Fingerprint

Projects

SRP69: SRP-Onderzoekszwaartepunt: Addressing the challenges around serious illness, palliative care and the end of life: public health, health services and clinical innovations

FWOSB51: Advance care planning (ACP) with people with dementia and their caregivers: development of an ACP communication in dementia skills training for physicians

Cite this