Ethical implications of longitudinal data collection on both the individual and societal level

Lies Lammens, Patrick Deboosere, Florence Cols, William D'hoore, Ann Ingenbleek, Yves Coppieters, Alain Leveque

Research output: Chapter in Book/Report/Conference proceedingMeeting abstract (Book)

Abstract

Technological innovation confronts researchers in industrialized societies with a fundamental ethical dilemma: the 'knowledge' versus 'privacy' dilemma. Longitudinal data offer particular interesting advantages for research, but they contain elements which could be threatening (or perceived as being threatening) to individuals' privacy. In an earlier paper we developed a conceptual framework on ethical implications of (health) data collecting projects. We reflected on the content of policy goals developed within the context of an ever more detailed data collection, and pointed to the potentially abusive use of collected data in the short (threatening people's privacy) and in the long run (threatening democracy). Here we confront this framework with the two differently organized statistical systems of the UK and Denmark.
Original languageEnglish
Title of host publicationPaper presented at the 25th International Methodology Symposium
Subtitle of host publicationLongitudinal Surveys: from Design to Analysis
Publication statusPublished - 27 Oct 2009
Event25th International Methodology Symposium - Gatineau, Canada
Duration: 27 Oct 200930 Oct 2009

Conference

Conference25th International Methodology Symposium
CountryCanada
CityGatineau
Period27/10/0930/10/09

Keywords

  • data collection
  • privacy
  • democracy
  • longitudinal

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