Preparedness for caregiving and preparedness for death: Associations and modifiable thereafter factors among family caregivers of patients with advanced cancer in specialized home care

Louise Häger Tibell, Kristofer Årestedt, Maja Holm, Viktoria Wallin, Gunnar Steineck, Peter Hudson, Ulrika Kreicbergs, Anette Alvariza

Research output: Contribution to journalArticlepeer-review

43 Downloads (Pure)

Abstract

The purpose of this study was to (1) explore associations between preparedness for caregiving and preparedness for death among family caregivers of patients with advanced cancer and (2) explore modifiable preparedness factors, such as communication and support. Data was derived from a baseline questionnaire collected in specialized home care. The questionnaire included socio-demographics, the Preparedness for Caregiving Scale, and single items addressing preparedness for death, received support and communication about incurable illness. Data was analyzed using descriptive statistics and Spearman correlations. Altogether 39 family caregivers participated. A significant association was found between preparedness for caregiving and preparedness for death. Received support and communication about the illness was associated with higher levels of preparedness for caregiving and death. This study contributes to evidence on the association between preparedness for caregiving and death, but also that communication and support employed by healthcare professionals could improve family caregiver preparedness and wellbeing.

Original languageEnglish
Pages (from-to)407-416
Number of pages10
JournalDeath Studies
Volume48
Issue number4
Early online date13 Jul 2023
DOIs
Publication statusPublished - 2024

Bibliographical note

Publisher Copyright:
© 2023 The Author(s). Published with license by Taylor & Francis Group, LLC.

Copyright:
Copyright 2023 Elsevier B.V., All rights reserved.

Fingerprint

Dive into the research topics of 'Preparedness for caregiving and preparedness for death: Associations and modifiable thereafter factors among family caregivers of patients with advanced cancer in specialized home care'. Together they form a unique fingerprint.

Cite this