Socio-economic outcomes among long-term childhood acute lymphoblastic leukaemia survivors enrolled between 1971 and 1998 in EORTC CLG studies: Results of the 58LAE study

European Organisation for Research and Treatment of Cancer (EORTC) Children's Leukemia Group (CLG), Melissa Barbati, Michal Kicinski, Stefan Suciu, Françoise Mazingue, Els Vandecruys, Geneviève Plat, Anne Uyttebroeck, Catherine Paillard, Marie-Françoise Dresse, Pauline Simon, Claire Pluchart, Odile Minckes, Alina Ferster, Claire Freycon, Frederic Millot, Jutte Van Der Werff Ten Bosch, Christophe Chantrain, Robert Paulus, Gaetan de SchaetzenGiovanna Rossi, Pierre Rohrlich, Yves Benoit, Caroline Piette

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    Abstract

    OBJECTIVE: The objective of this study is to evaluate the socio-economic outcomes of survivors of childhood acute lymphoblastic leukaemia (ALL).

    METHODS: Childhood ALL adult survivors, enrolled in EORTC trials between 1971 and 1998 in France and Belgium, were invited to fill out a questionnaire with information about their socio-economic situation (living with a partner, having a university degree, having a job, working part time and history of having a paid job). The outcomes were compared with two matched control populations.

    RESULTS: Among 1418 eligible patients, 507 (35.8%) participated, including 39 (8%) and 61 (12%) patients who received a haematopoietic stem cell transplantation (HSCT) and a cranial radiotherapy (CRT), respectively. The median time to follow-up was 20 years, and median age was 25 years. Survivors showed a socio-economic level at least as good as controls. HCST and CRT were associated with a higher probability of not obtaining a bachelor degree (respectively OR = 3.49, 95% CI: 1.46-8.35 and OR = 2.31, 95% CI: 1.04-5.15), HSCT was associated with unemployment (OR = 2.89, 95% CI: 1.09-7.65) and having a relapse was associated with a higher probability of not having a partner (OR = 1.88, 95% CI: 1.01-3.51) adjusting for confounders.

    CONCLUSION: Childhood ALL survivors showed a high level of socio-economic participation. HCST and CRT were associated with poorer functioning.

    Original languageEnglish
    Article numbere13755
    Number of pages11
    JournalEuropean Journal of Cancer Care
    Volume31
    Issue number6
    DOIs
    Publication statusPublished - Nov 2022

    Keywords

    • Adult
    • Humans
    • Survivors
    • Precursor Cell Lymphoblastic Leukemia-Lymphoma/therapy
    • Cranial Irradiation
    • Employment
    • Marital Status

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