Systematic Quality Monitoring For Specialized Palliative Care Services: Development of a Minimal Set of Quality Indicators for Palliative Care Study (QPAC)

Kathleen Leemans, L Deliens, L Van den Block, R Vander Stichele, A L Francke, J Cohen

Research output: Contribution to journalArticlepeer-review

14 Citations (Scopus)

Abstract

BACKGROUND: A feasibility evaluation of a comprehensive quality indicator set for palliative care identified the need for a minimal selection of these indicators to monitor quality of palliative care services with short questionnaires for the patients, caregivers, and family carers.

OBJECTIVES: To develop a minimal indicator set for efficient quality assessment in palliative care.

DESIGN: A 2 round modified Research ANd Development corporation in collaboration with the University of California at Los Angeles (RAND/UCLA) expert consultation.

SETTING/PATIENTS: Thirteen experts in palliative care (professionals and patient representatives).

MEASUREMENTS: In a home assignment, experts were asked to score 80 developed indicators for "priority" to be included in the minimal set on a scale from 0 (lowest priority) to 9 (highest priority). The second round consisted of a plenary meeting in which the minimal set was finalized.

RESULTS: Thirty-nine of the 80 indicators were discarded, while 19 were definitely selected after the home assignment, and 22 were proposed for discussion during the meeting; 12 of these survived the selection round. The final minimal indicator set for palliative care consists of 5 indicators about the physical aspects of care; 6 about the psychosocial aspects of care; 13 about information, communication, and care planning; 5 about type of care; and 2 about continuity of care.

CONCLUSION: A minimal set of 31 indicators reflecting all the important issues in palliative care was created for palliative care services to assess the quality of their care in a quick and efficient manner. Additional topic-specific optional modules are available for more thorough assessment of specific aspects of care.

Original languageEnglish
Pages (from-to)532-546
Number of pages15
JournalAmerican Journal of Hospice and Palliative Medicine
Volume34
Issue number6
DOIs
Publication statusPublished - Jul 2017

Keywords

  • minimal data set
  • palliative care
  • quality assessment
  • quality improvement
  • quality indicators
  • Quality of Health Care/standards
  • Palliative Care/standards
  • Humans
  • Male
  • Quality Indicators, Health Care/standards
  • Delphi Technique
  • Female
  • Surveys and Questionnaires
  • Los Angeles

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