Walking the talk for dementia: A unique immersive, embodied, and multi-experiential initiative

Fernando Aguzzoli Peres, Aline Nogueira Haas, Angga Dwi Martha, Melissa Chan, Michelle Steele, Maria Teresa Ferretti, Ntokozo N Ngcobo, Stefania Ilinca, Clara Domínguez-Vivero, Iracema Leroi, Nisha Sajnani, Eduardo R Zimmer, Alex Kornhuber, Alexandre Kalache, Berrie Holtzhausen, Catarina Tristão-Pereira, Charlèss Dupont, Dan Cohen, David de Jong, David FacalDesmond O'Sullivan, Elaine Mateus, Enzo Roso, Evon Estrop, Giulia Gamba, Gustavo San Martin Elexpe, Hector Ulises Diaz Hernández, Helena Quaid, Ishtar Govia, João Barbosa, Joaquina García Del Moral, Johnny Miller, José Antonio García García, Kevin Quaid, Laura Navarro, Laura Zúñiga García, Laureen Waters, Lebo Molete, Maria Eugenia Godoy, Maureen Sigauke, Max William de Ataide Schulte, Peter Estrop, Priscilla San Martin Elexpe Cardoso, Randall Perez, Rianna Patterson, Ronika Chakrabarti, Ruth Wong, Sara Marsillas, Shontonese Lowe, Taida Sánchez Rego, Temitope Farombi, Theresa Montgomery, Ton In 't Veen, Valli Yanni, Wendy Weidner, Agustin Ibanez

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Abstract

Coping with dementia requires an integrated approach encompassing personal, health, research, and community domains. Here we describe "Walking the Talk for Dementia," an immersive initiative aimed at empowering people with dementia, enhancing dementia understanding, and inspiring collaborations. This initiative involved 300 participants from 25 nationalities, including people with dementia, care partners, clinicians, policymakers, researchers, and advocates for a 4-day, 40 km walk through the Camino de Santiago de Compostela, Spain. A 2-day symposium after the journey provided novel transdisciplinary and horizontal structures, deconstructing traditional hierarchies. The innovation of this initiative lies in its ability to merge a physical experience with knowledge exchange for diversifying individuals' understanding of dementia. It showcases the transformative potential of an immersive, embodied, and multi-experiential approach to address the complexities of dementia collaboratively. The initiative offers a scalable model to enhance understanding, decrease stigma, and promote more comprehensive and empathetic dementia care and research.

Original languageEnglish
Pages (from-to)2309-2322
Number of pages14
JournalAlzheimer's & Dementia
Volume20
Issue number3
Early online date26 Jan 2024
DOIs
Publication statusPublished - Mar 2024

Bibliographical note

© 2024 The Authors. Alzheimer's & Dementia published by Wiley Periodicals LLC on behalf of Alzheimer's Association.

Funding Information:
Walking the Talk for Dementia 2023 received funding from Atlantic Philanthropy, ISTAART, and GBHI to support travels and logistics. The project had the main support of the Association “Crônicos do Dia a Dia,” a Brazilian nonprofit organization dedicated to individuals with chronic diagnoses. The event also received funding and collaboration from BrainLat, Galician Society of Neurology, Abanca Foundation, Alzheimer Galicia Federation, and San Francisco Hotel. A.I. is partially supported by grants from ANID/FONDECYT Regular (1210195, 1210176, and 1220995); ANID/FONDAP/15150012; ANID/PIA/ANILLOS ACT210096; FONDEF ID20I10152, ANID/FONDAP 15150012; Takeda CW2680521 and the MULTI‐PARTNER CONSORTIUM TO EXPAND DEMENTIA RESEARCH IN LATIN AMERICA [ReDLat, supported by Fogarty International Center (FIC) and National Institutes of Health, National Institutes of Aging (R01 AG057234, R01 AG075775, R01 AG21051, R01 AG083799, CARDS‐NIH), Alzheimer's Association (SG‐20‐725707), Rainwater Charitable foundation – Tau Consortium, the Bluefield Project to Cure Frontotemporal Dementia, and Global Brain Health Institute)]. The contents of this publication are solely the responsibility of the authors and do not represent the official views of these institutions. The funders had no role in study design, data collection and analysis, the decision to publish, or manuscript preparation. We used a large language model to integrate the Survey's opinions and detect language typos.

Publisher Copyright:
© 2024 The Authors. Alzheimer's & Dementia published by Wiley Periodicals LLC on behalf of Alzheimer's Association.

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