Evaluation of a nurse-led multi-component transition program for adolescents with congenital heart disease

Michèle de Hosson, Katya De Groote, Ann Van Hecke, Daniël De Wolf, Kristof Vandekerckhove, Laura Muiño Mosquera, Joseph Panzer, Karen Logghe, Saskia Mels, Laurent Demulier, Laurence Campens, Eva Goossens, Julie De Backer

Onderzoeksoutput: Articlepeer review


OBJECTIVE: To evaluate the effectiveness of the transition program for adolescents with congenital heart disease (CHD) 'Transition With a Heart' (TWAH) on disease-related knowledge, quality of life (QoL), transition experiences, and gaps in follow-up.

METHODS: A study with pre-posttest and control group (post-test) using consecutive sampling, including adolescents with moderate to severely complex CHD, without intellectual disability, aged≥ 12 y, and parents. After weighting, t-tests were performed. A multivariable regression analysis explored the outcomes' determinants.

RESULTS: In the intervention group, 28 adolescents and 25 parents were included, and 53 adolescents and 18 parents as controls. Adolescents' knowledge significantly increased after completing TWAH (from 59.8% to 75.7%;p < 0.01). Their knowledge was positively correlated with TWAH (β = +13.3;p < 0.01). Adolescents' transition experiences were also positively related to TWAH (general experience: β = +5.5;p < 0.01; transfer satisfaction: β = +0.8; p < 0.01). Adolescents' QoL was mainly determined by CHD complexity and not by TWAH. No one showed gaps in follow-up. TWAH was not associated with parents' transition experiences.

CONCLUSION: Implementing TWAH substantially improved adolescents' disease-related knowledge and transition experiences.

PRACTICE IMPLICATIONS: The results regarding transition experiences need to be confirmed by further research. The TWAH design with the person-tailored educational program, skills training, and the transition coordinator can be used in settings with other chronic diseases.

Originele taal-2English
Aantal pagina's10
TijdschriftPatient Education and Counseling
StatusPublished - jan 2024

Bibliografische nota

Copyright © 2023 Elsevier B.V. All rights reserved.


  • Heart defects
  • Congenital
  • Transitonal Care
  • Transition Program
  • Transition to adult care Chronic Disease


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