TY - JOUR
T1 - Integrating patient-centred and tumour-centred cancer care
T2 - the EU-MyPath implementation project offers an innovative digital solution with care pathways
AU - Scherrens, Anne-Lore
AU - Jacobs, An
AU - Beernaert, Kim
AU - Pardon, Koen
AU - Raemdonck, Eveline
AU - Fallon, Marie
AU - Cresswell, Kathrin
AU - Faric, Nusa
AU - Williams, Robin
AU - Lundeby, Tonje
AU - Hjermstad, Marianne J
AU - Deliens, Luc
AU - Kaasa, Stein
N1 - Funding Information:
We thank the MyPath consortium for their contribution to this manuscript. The MyPath consortium contains the following people: Trine H. Gravli, Nina Aass, Alen Brkic, Amaia Urrizola, Kristin Solheim Hustad, Barry Laird, Peter Hall, Joanna Bowden, Augusto Caraceni, Morena Shkodra, Emanuela Zito, Marta Brambilla, Giacomo Massa, Giuseppe Lo Russo, Lore Decoster, Andres Cervantes. Manuel Alos, David Pajar\u00F3n, Marisol Huerta, Ana Miralles, Arantxa Valls, Vict\u00F2ria Freitas Durks, Galina Velikova, Kate Absolom, Lorraine Warrington, Geana Kurita, Camilla Lykke, Helle Pappot, Per Sj\u00F8gren, Ulrik Lassen, Henrik Larsen, Ulla Mathiesen, Daniela Mosoiu, Nicoleta Mitrea, Oana Predoiu, Steven Olde Damink, Judith de Vos Geelen, Dag Ausen, Marianne Tveitan, Morten Andresen, Guro Meldre Pedersen, Marco Cavallaro, Julia Goetz, Julie Ling, Cathy Payne, Carla Reigada, Nicole Latino and Felicity Evans. The authors disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: MyPath is funded by the European Union (Grant no. 101057514) and supported by Innovate UK and the Swiss State Secretariat for Education, Research and Innovation (SERI). Views and opinions expressed are however those of the author(s) only and do not necessarily reflect those of the European Union or the European Health and Digital Executive Agency (HADEA). Neither the European Union nor the granting authority can be held responsible for them.
Publisher Copyright:
© The Author(s) 2024.
PY - 2024/1/1
Y1 - 2024/1/1
N2 - Cancer is one of the leading causes of mortality, with new cases expected to rise. Medical advances increase cure rates and prolong patient lives, but survivorship involves high symptom burden, loss of function and emotional distress. Improving patient-centred care (PCC) and quality of life throughout the care process is essential. Key to this improvement are systematic use of patient-reported outcome measures (PROMs) and patient-centred care pathways (PCCPs). Despite established benefits, current cancer care focuses on tumour-centred care approaches often neglecting the patient perspective. Evidence-based PCC guidelines fail to be routinely incorporated into clinical practices. The Horizon 2020-funded European MyPath project aims to address these gaps by developing, implementing and evaluating digital PCCPs with PROMs. MyPath will be tailored to enhance the organisational contexts of cancer centres across Europe through the application of implementation science strategies. This paper describes the current state of applying PCC in routine cancer care and presents a forward-looking perspective on how the MyPath project can successfully adopt and implement digital PROMs across countries. A literature search was conducted to provide the state-of-the art.
AB - Cancer is one of the leading causes of mortality, with new cases expected to rise. Medical advances increase cure rates and prolong patient lives, but survivorship involves high symptom burden, loss of function and emotional distress. Improving patient-centred care (PCC) and quality of life throughout the care process is essential. Key to this improvement are systematic use of patient-reported outcome measures (PROMs) and patient-centred care pathways (PCCPs). Despite established benefits, current cancer care focuses on tumour-centred care approaches often neglecting the patient perspective. Evidence-based PCC guidelines fail to be routinely incorporated into clinical practices. The Horizon 2020-funded European MyPath project aims to address these gaps by developing, implementing and evaluating digital PCCPs with PROMs. MyPath will be tailored to enhance the organisational contexts of cancer centres across Europe through the application of implementation science strategies. This paper describes the current state of applying PCC in routine cancer care and presents a forward-looking perspective on how the MyPath project can successfully adopt and implement digital PROMs across countries. A literature search was conducted to provide the state-of-the art.
KW - implementation science
KW - medical oncology
KW - patient care planning
KW - patient-centred care
KW - psycho-oncology
KW - quality of life
KW - patient-reported outcome measures
UR - http://www.scopus.com/inward/record.url?scp=85211123287&partnerID=8YFLogxK
U2 - 10.1177/26323524241296143
DO - 10.1177/26323524241296143
M3 - Scientific review
C2 - 39568798
SN - 2632-3524
VL - 18
SP - 1
EP - 11
JO - Palliative Care and Social Practice
JF - Palliative Care and Social Practice
ER -