Patient and Caregiver Experience Decision Factors in Treatment Decision Making-Results of a Systematic Literature Review of Multiple Myeloma Decision Aids

Mimi Choon-Quinones, Dirk Hose, Zoltán Kaló, Tamás Zelei, Jean-Luc Harousseau, Brian Durie, Paul Keown, Mike Barnett, Ivett Jakab

Onderzoeksoutput: Articlepeer review

1 Citaat (Scopus)

Samenvatting

OBJECTIVES: Decision-aids (DAs) may facilitate shared decision-making for patients and caregivers, by providing evidence-based information to assist healthcare professionals, patients, and caregivers in making choices about aspects of care, and/or highlighting decision factors to discuss with the potential of altering the treatment decision. These decision factors may not be well integrated in DAs.

METHODS: A systematic literature review was conducted in the field of multiple myeloma (MM) on peer-reviewed publications, extended with a gray literature search. Data on whether and how patient and caregiver experience elements, other than survival and physical quality of life, were mentioned as decision factors in the identified MM DAs were extracted and analyzed qualitatively.

RESULTS: Seventy MM DAs were found and analyzed; 51% of DAs mentioned any patient non-routinely assessed experience decision factors and only 17% mentioned any caregiver-related information. One hundred and forty potential decision factors were extracted, deduplicated and categorized into the following categories: 1) financial, 2) mode of administration / transportation issues, 3) personal beliefs and values, 4) emotional and social quality of life, 5) other medical information, 6) availability of social support, 7) caregiver burden. None of the DAs presented a comprehensive framework on all seven categories of decision factors being consider when mapping patient and caregiver experience value elements in MM.

CONCLUSIONS: Based on available DAs, we recommend a set of patient and caregiver experience decision factors that have the potential to affect treatment choices of patients with MM, which should be included in DAs, including MM clinical guidelines.

Originele taal-2English
Pagina's (van-tot)39-49
Aantal pagina's11
TijdschriftValue in Health
Volume26
Nummer van het tijdschrift1
Vroegere onlinedatum2022
DOI's
StatusPublished - jan 2023

Bibliografische nota

Funding Information:
Funding/Support: Funding for this study was provided by the International Myeloma Foundation and Bristol-Myers Squibb. The International Myeloma Foundation provided grants to the Syreon Research Institute to conduct the study.

Funding Information:
Funding/Support: Funding for this study was provided by the International Myeloma Foundation and Bristol-Myers Squibb . The International Myeloma Foundation provided grants to the Syreon Research Institute to conduct the study.

Publisher Copyright:
© 2022

Copyright:
Copyright 2023 Elsevier B.V., All rights reserved.

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