Preparedness for caregiving and preparedness for death: Associations and modifiable thereafter factors among family caregivers of patients with advanced cancer in specialized home care

Louise Häger Tibell, Kristofer Årestedt, Maja Holm, Viktoria Wallin, Gunnar Steineck, Peter Hudson, Ulrika Kreicbergs, Anette Alvariza

Onderzoeksoutput: Articlepeer review

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Samenvatting

The purpose of this study was to (1) explore associations between preparedness for caregiving and preparedness for death among family caregivers of patients with advanced cancer and (2) explore modifiable preparedness factors, such as communication and support. Data was derived from a baseline questionnaire collected in specialized home care. The questionnaire included socio-demographics, the Preparedness for Caregiving Scale, and single items addressing preparedness for death, received support and communication about incurable illness. Data was analyzed using descriptive statistics and Spearman correlations. Altogether 39 family caregivers participated. A significant association was found between preparedness for caregiving and preparedness for death. Received support and communication about the illness was associated with higher levels of preparedness for caregiving and death. This study contributes to evidence on the association between preparedness for caregiving and death, but also that communication and support employed by healthcare professionals could improve family caregiver preparedness and wellbeing.

Originele taal-2English
Pagina's (van-tot)407-416
Aantal pagina's10
TijdschriftDeath Studies
Volume48
Nummer van het tijdschrift4
Vroegere onlinedatum13 jul 2023
DOI's
StatusPublished - 2024

Bibliografische nota

Publisher Copyright:
© 2023 The Author(s). Published with license by Taylor & Francis Group, LLC.

Copyright:
Copyright 2023 Elsevier B.V., All rights reserved.

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