TY - JOUR
T1 - Relational aspects of mastery for frail, older adults: The role of informal caregivers in the care process
AU - D-SCOPE Consortium
AU - Lambotte, Deborah
AU - Kardol, Martinus J.M.
AU - Schoenmakers, Birgitte
AU - Fret, Bram
AU - Smetcoren, An Sofie
AU - De Roeck, Ellen E.
AU - Van der Elst, Michaël
AU - De Donder, Liesbeth
AU - Dury, S.
AU - Dierckx, E.
AU - Duppen, D.
AU - Verté, D.
AU - Hoeyberghs, L. J.
AU - De Witte, N.
AU - Engelborghs, S.
AU - De Deyn, P. P.
AU - De Lepeleire, J.
AU - van der Vorst, A.
AU - Zijlstra, G. A.R.
AU - Kempen, G. I.J.M.
AU - Schols, J. M.G.A.
N1 - Funding Information:
Deborah Lambotte, Department of Educational Sciences, Vrije Universiteit Brussel, Brussels, Belgium. Email: [email protected] Funding information This research was supported by a grant from the Flemish Government Agency for Innovation by Science and Technology [IWT‐140027 SBO].
Funding Information:
Funding information This research was supported by a grant from the Flemish Government Agency for Innovation by Science and Technology [IWT-140027 SBO]. The D-SCOPE Consortium is an international research consortium and is composed of researchers from Vrije Universiteit Brussel, Belgium (Dr. A-.S. Smetcoren, Dr. S. Dury, Prof. Dr. L. De Donder, Prof. Dr. E. Dierckx, D. Lambotte, B. Fret, D. Duppen, Prof. Dr. M. Kardol, Prof. Dr. D. Vert?); College University Ghent, Belgium (L.J. Hoeyberghs, Prof. Dr. N. De Witte); Universiteit Antwerpen, Belgium (E. E. De Roeck, Prof. Dr. S. Engelborghs, Prof. Dr. P.P. De Deyn); Katholieke Universiteit Leuven, Belgium (M. Van der Elst, Prof. Dr. J. De Lepeleire, Prof. Dr. B. Schoenmakers); and Maastricht University, the Netherlands (A. van der Vorst, Dr. G.A.R. Zijlstra, Prof. Dr. G.I. J. M. Kempen, Prof. Dr. J. M.G. A. Schols). The authors warmly thank the older respondents who participated in the study.
Publisher Copyright:
© 2018 John Wiley & Sons Ltd
PY - 2019/5
Y1 - 2019/5
N2 - Frail, older care recipients are often thought of as individuals with a decreased mastery of everyday life skills. Various authors have proposed to acknowledge a relational dimension of mastery, defined as the ability to maintain control over one’s life with the help of others. This study explores how frail, older adults experience relational aspects of mastery and the role of their informal caregivers in maintaining these aspects of mastery over the care process. Qualitative interviews (N = 121) were conducted in 2016 with potentially frail, community‐dwelling older adults participating in the Detection, Support and Care for Older people: Prevention and Empowerment (D‐SCOPE) project. A secondary analysis of 65 interviews reveals that, according to frail, older adults, informal caregivers contribute in various ways to the preservation of their mastery. This differs across the four elements of care: caring about (attentiveness), taking care of (responsibility), care‐giving (competence), and care‐receiving (responsiveness). However, in some cases, older adults experienced a loss of mastery; for example, when informal caregivers did not understand their care needs and did not involve them in the decision, organisation, and provision of care. A relational dimension of mastery needs to be acknowledged in frail, older care recipients since stimulating mastery is a crucial element for realising community care objectives and person‐centred and integrated care.
AB - Frail, older care recipients are often thought of as individuals with a decreased mastery of everyday life skills. Various authors have proposed to acknowledge a relational dimension of mastery, defined as the ability to maintain control over one’s life with the help of others. This study explores how frail, older adults experience relational aspects of mastery and the role of their informal caregivers in maintaining these aspects of mastery over the care process. Qualitative interviews (N = 121) were conducted in 2016 with potentially frail, community‐dwelling older adults participating in the Detection, Support and Care for Older people: Prevention and Empowerment (D‐SCOPE) project. A secondary analysis of 65 interviews reveals that, according to frail, older adults, informal caregivers contribute in various ways to the preservation of their mastery. This differs across the four elements of care: caring about (attentiveness), taking care of (responsibility), care‐giving (competence), and care‐receiving (responsiveness). However, in some cases, older adults experienced a loss of mastery; for example, when informal caregivers did not understand their care needs and did not involve them in the decision, organisation, and provision of care. A relational dimension of mastery needs to be acknowledged in frail, older care recipients since stimulating mastery is a crucial element for realising community care objectives and person‐centred and integrated care.
KW - informal care
KW - older adults
KW - qualitative research
KW - relational aspects of mastery
KW - secondary analysis
UR - http://www.scopus.com/inward/record.url?scp=85055869728&partnerID=8YFLogxK
U2 - 10.1111/hsc.12676
DO - 10.1111/hsc.12676
M3 - Article
C2 - 30375701
AN - SCOPUS:85055869728
VL - 27
SP - 632
EP - 641
JO - Health & Social Care in the Community
JF - Health & Social Care in the Community
SN - 0966-0410
IS - 3
ER -