Researching Compassionate Communities: Identifying theoretical frameworks to evaluate the complex processes behind public health palliative care initiatives

Hanne Bakelants; Steven Vanderstichelen; Kenneth Chambaere; Filip Van Droogenbroeck; Liesbeth De Donder; Luc Deliens; Sarah Dury; Joachim Cohen

doi:10.1177/02692163221146589

Researching Compassionate Communities: Identifying theoretical frameworks to evaluate the complex processes behind public health palliative care initiatives

Hanne Bakelants, Steven Vanderstichelen, Kenneth Chambaere, Filip Van Droogenbroeck, Liesbeth De Donder, Luc Deliens, Sarah Dury, Joachim Cohen

Onderzoeksoutput: Article › peer review

9 Citaten (Scopus)

156 Downloads (Pure)

Samenvatting

BACKGROUND: Compassionate Communities have been put forward as a new model for community-based palliative care to positively impact the health and wellbeing of those experiencing challenges of serious illness, death, dying, and loss. Despite the growing international movement to develop these public health initiatives to end-of-life care, only a handful of initiatives have undergone some form of evaluation.

AIM: To provide guidance on designing evaluation research by identifying theoretical frameworks to understand the development, implementation, and underlying mechanisms of Compassionate Communities.

METHODS: To identify suitable theoretical frameworks for the study of Compassionate Communities, we applied two steps. The first step examined the characteristics of Compassionate Communities and translated them into assessment criteria for the selection of theoretical frameworks. The second step consisted of applying the identified assessment criteria to a list of widely used and highly cited theoretical frameworks.

RESULTS: Three well-established theoretical frameworks were identified as being most suitable to study the development, implementation, and underlying mechanisms of Compassionate Communities: The Consolidated Framework for Implementation Research (CFIR), the integrated-Promoting Action on Research Implementation in Health Services framework (i-PARIHS), and the Extended Normalization Process Theory (ENPT).

CONCLUSIONS: The article supports and encourages the use of theoretical frameworks to evaluate the complex processes behind public health palliative care initiatives. The complementary use of two determinant frameworks and an implementation theory provides theoretical grounding to gain rich insights into the emergent and shifting interplays between agency, social processes, and contextual factors that shape the development and implementation of Compassionate Communities.

Originele taal-2	English
Pagina's (van-tot)	291-301
Aantal pagina's	11
Tijdschrift	Palliative Medicine
Volume	37
Nummer van het tijdschrift	2
DOI's	https://doi.org/10.1177/02692163221146589
Status	Published - feb. 2023

Bibliografische nota

Funding Information:
The author(s) disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: This study is supported by the Compassionate Communities Center of Expertise (COCO) of Vrije Universiteit Brussel (VUB), Pleinlaan 2, 1050 Brussels, Belgium.

Publisher Copyright:
© The Author(s) 2022.

Copyright:
Copyright 2023 Elsevier B.V., All rights reserved.

Toegang tot document

10.1177/02692163221146589

2022_BakelantsH_PalliatMedAccepted author manuscript, 343 KBLicentie: Other

Andere bestanden en links

Link naar publicatie in Scopus

1 Afgelopen
2 Actief

SRP69: SRP-Onderzoekszwaartepunt: Het aanpakken van de uitdagingen rond ernstige ziekten, palliatieve zorg en het levenseinde: public health, health services en klinische innovaties
Cohen, J., Van den Block, L., Deliens, L., Vanderstichelen, S. & Pardon, K.
1/11/22 → 31/10/27
Project: Fundamenteel
IRP16: Onderzoek en Sociale Verandering ter bevordering van Compassionate Communities (RESOCO)
Deliens, L., De Donder, L., Cohen, J., Chambaere, K., Dury, S., Dierckx, E., Verté, D., Schotte, C., Theuns, P., Baetens, I., De Gieter, S., Lombaerts, K., De Backer, F., Spruyt, B., Van Droogenbroeck, F., Vanroelen, C., Ryckewaert, M. & Vanderstichelen, S.
1/11/19 → 31/10/26
Project: Fundamenteel
FWOSBO29: SBO project met een primaire economische finaliteit: CAPACITY: project ter ontwikkeling van capaciteit inzake palliatieve zorg in de maatschappij
Cohen, J., Van den Block, L. & Smets, T.
1/01/19 → 31/12/22
Project: Toegepast

Citeer dit

@article{e207abae26504c4f9993932665b2302f,

title = "Researching Compassionate Communities: Identifying theoretical frameworks to evaluate the complex processes behind public health palliative care initiatives",

abstract = "BACKGROUND: Compassionate Communities have been put forward as a new model for community-based palliative care to positively impact the health and wellbeing of those experiencing challenges of serious illness, death, dying, and loss. Despite the growing international movement to develop these public health initiatives to end-of-life care, only a handful of initiatives have undergone some form of evaluation.AIM: To provide guidance on designing evaluation research by identifying theoretical frameworks to understand the development, implementation, and underlying mechanisms of Compassionate Communities.METHODS: To identify suitable theoretical frameworks for the study of Compassionate Communities, we applied two steps. The first step examined the characteristics of Compassionate Communities and translated them into assessment criteria for the selection of theoretical frameworks. The second step consisted of applying the identified assessment criteria to a list of widely used and highly cited theoretical frameworks.RESULTS: Three well-established theoretical frameworks were identified as being most suitable to study the development, implementation, and underlying mechanisms of Compassionate Communities: The Consolidated Framework for Implementation Research (CFIR), the integrated-Promoting Action on Research Implementation in Health Services framework (i-PARIHS), and the Extended Normalization Process Theory (ENPT).CONCLUSIONS: The article supports and encourages the use of theoretical frameworks to evaluate the complex processes behind public health palliative care initiatives. The complementary use of two determinant frameworks and an implementation theory provides theoretical grounding to gain rich insights into the emergent and shifting interplays between agency, social processes, and contextual factors that shape the development and implementation of Compassionate Communities.",

keywords = "Public health, compassionate communities, evaluation methodology, implementation science, palliative care",

author = "Hanne Bakelants and Steven Vanderstichelen and Kenneth Chambaere and {Van Droogenbroeck}, Filip and {De Donder}, Liesbeth and Luc Deliens and Sarah Dury and Joachim Cohen",

note = "Funding Information: The author(s) disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: This study is supported by the Compassionate Communities Center of Expertise (COCO) of Vrije Universiteit Brussel (VUB), Pleinlaan 2, 1050 Brussels, Belgium. Publisher Copyright: {\textcopyright} The Author(s) 2022. Copyright: Copyright 2023 Elsevier B.V., All rights reserved.",

year = "2023",

month = feb,

doi = "10.1177/02692163221146589",

language = "English",

volume = "37",

pages = "291--301",

journal = "Palliative Medicine",

issn = "0269-2163",

publisher = "SAGE Publications Ltd",

number = "2",

}

Bakelants, H , Vanderstichelen, S , Chambaere, K , Van Droogenbroeck, F , De Donder, L , Deliens, L , Dury, S & Cohen, J 2023, 'Researching Compassionate Communities: Identifying theoretical frameworks to evaluate the complex processes behind public health palliative care initiatives', Palliative Medicine, vol. 37, nr. 2, blz. 291-301. https://doi.org/10.1177/02692163221146589

TY - JOUR

T1 - Researching Compassionate Communities

T2 - Identifying theoretical frameworks to evaluate the complex processes behind public health palliative care initiatives

AU - Bakelants, Hanne

AU - Vanderstichelen, Steven

AU - Chambaere, Kenneth

AU - Van Droogenbroeck, Filip

AU - De Donder, Liesbeth

AU - Deliens, Luc

AU - Dury, Sarah

AU - Cohen, Joachim

N1 - Funding Information: The author(s) disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: This study is supported by the Compassionate Communities Center of Expertise (COCO) of Vrije Universiteit Brussel (VUB), Pleinlaan 2, 1050 Brussels, Belgium. Publisher Copyright: © The Author(s) 2022. Copyright: Copyright 2023 Elsevier B.V., All rights reserved.

PY - 2023/2

Y1 - 2023/2

N2 - BACKGROUND: Compassionate Communities have been put forward as a new model for community-based palliative care to positively impact the health and wellbeing of those experiencing challenges of serious illness, death, dying, and loss. Despite the growing international movement to develop these public health initiatives to end-of-life care, only a handful of initiatives have undergone some form of evaluation.AIM: To provide guidance on designing evaluation research by identifying theoretical frameworks to understand the development, implementation, and underlying mechanisms of Compassionate Communities.METHODS: To identify suitable theoretical frameworks for the study of Compassionate Communities, we applied two steps. The first step examined the characteristics of Compassionate Communities and translated them into assessment criteria for the selection of theoretical frameworks. The second step consisted of applying the identified assessment criteria to a list of widely used and highly cited theoretical frameworks.RESULTS: Three well-established theoretical frameworks were identified as being most suitable to study the development, implementation, and underlying mechanisms of Compassionate Communities: The Consolidated Framework for Implementation Research (CFIR), the integrated-Promoting Action on Research Implementation in Health Services framework (i-PARIHS), and the Extended Normalization Process Theory (ENPT).CONCLUSIONS: The article supports and encourages the use of theoretical frameworks to evaluate the complex processes behind public health palliative care initiatives. The complementary use of two determinant frameworks and an implementation theory provides theoretical grounding to gain rich insights into the emergent and shifting interplays between agency, social processes, and contextual factors that shape the development and implementation of Compassionate Communities.

AB - BACKGROUND: Compassionate Communities have been put forward as a new model for community-based palliative care to positively impact the health and wellbeing of those experiencing challenges of serious illness, death, dying, and loss. Despite the growing international movement to develop these public health initiatives to end-of-life care, only a handful of initiatives have undergone some form of evaluation.AIM: To provide guidance on designing evaluation research by identifying theoretical frameworks to understand the development, implementation, and underlying mechanisms of Compassionate Communities.METHODS: To identify suitable theoretical frameworks for the study of Compassionate Communities, we applied two steps. The first step examined the characteristics of Compassionate Communities and translated them into assessment criteria for the selection of theoretical frameworks. The second step consisted of applying the identified assessment criteria to a list of widely used and highly cited theoretical frameworks.RESULTS: Three well-established theoretical frameworks were identified as being most suitable to study the development, implementation, and underlying mechanisms of Compassionate Communities: The Consolidated Framework for Implementation Research (CFIR), the integrated-Promoting Action on Research Implementation in Health Services framework (i-PARIHS), and the Extended Normalization Process Theory (ENPT).CONCLUSIONS: The article supports and encourages the use of theoretical frameworks to evaluate the complex processes behind public health palliative care initiatives. The complementary use of two determinant frameworks and an implementation theory provides theoretical grounding to gain rich insights into the emergent and shifting interplays between agency, social processes, and contextual factors that shape the development and implementation of Compassionate Communities.

KW - Public health

KW - compassionate communities

KW - evaluation methodology

KW - implementation science

KW - palliative care

UR - http://www.scopus.com/inward/record.url?scp=85145309970&partnerID=8YFLogxK

U2 - 10.1177/02692163221146589

DO - 10.1177/02692163221146589

M3 - Article

C2 - 36576313

SN - 0269-2163

VL - 37

SP - 291

EP - 301

JO - Palliative Medicine

JF - Palliative Medicine

IS - 2

ER -

Researching Compassionate Communities: Identifying theoretical frameworks to evaluate the complex processes behind public health palliative care initiatives

Samenvatting

Bibliografische nota

Toegang tot document

Andere bestanden en links

Vingerafdruk

Projecten

SRP69: SRP-Onderzoekszwaartepunt: Het aanpakken van de uitdagingen rond ernstige ziekten, palliatieve zorg en het levenseinde: public health, health services en klinische innovaties

IRP16: Onderzoek en Sociale Verandering ter bevordering van Compassionate Communities (RESOCO)

FWOSBO29: SBO project met een primaire economische finaliteit: CAPACITY: project ter ontwikkeling van capaciteit inzake palliatieve zorg in de maatschappij

Citeer dit